Wednesday, June 11, 2014

7 months later..... still trudging through the mess Cancer left, inconsiderate jerk.

Fast Forward... to today. I am probably about 4 and 1/2 months out of hospital treatment and 6 months Cancer Free. The Tumor was small, 3.8 cm, and so It would seem to me like I should just move on, forget about all this Cancer stuff. It wasn't as if I had to have extensive Chemotherapy and Radiation treatments, I didn't lose my fertility, and I have a minuscule chance of recurrence. So why can't I just "Move On"? Truthfully, I don't know the answer to this question. I have spoken to many other survivors, I know about the "New Normal". I attended the OMG Summit 2014 this last April, and it was exactly what I needed to cope with my diagnosis and the impact it will have on the rest of my life. I was able to meet so many amazing young adults, All fighting various battles, and a safe place for me to finally talk about "the Cancer". I just usually feel like I make everyone in the room uncomfortable if I bring up "the Cancer" but its always right there in the fore front of my mind. I try to be as grateful as I can be, My Cancer was caught early, I'm one of the "lucky ones" I guess. and don't get me wrong, I do feel lucky, but I feel like if were looking at things from a luck perspective, I would have to say the people who manage to live their entire lives and NOT get Cancer, would be the winners...... Somehow, being 30 and having ALREADY had kidney Cancer just seems crummy.  The Financial aftermath Cancer has left Me and so many other AYA Survivors with is devastating, and probably unfathomable to the other people in my age group. I would have to say my treatment alone, this is without Chemo mind you, cost at least 50,000 when all was said and done, maybe more. Every time I get a scan, or have to see my other doctors, it costs. Then there would be the scarring, internal scarring in and around the Kidney that was worked on will flair up and hurt. And you can forget about Alcohol, 1 beer has me throbbing. Those carefree after work happy hours are no more for this 30 something gal. And the 4 or 5 scars on my abdomen from the numerous surgeries, and the way my waist is now always shaped like I have a rubber band cutting me across the middle, which takes a toll on how I view myself as a woman. That and the weight I gained as a result of being convalescent for close to 4 months doesn't help in that respect either. I am comforted by the #underthereddress movement, A group dedicated to helping women cope with the aftermath of Cancer on their bodies, and StupidCancer.org, A group dedicated to reaching out and helping AYA Cancer patients and survivors to give them the resources and support they need during these trying times.  But I'm still lost at sea here. I'm still feeling the isolation that Cancer brings. Kidney Cancer is rare in Young People. It is generally found In either very young children (wilm's tumor) or in Adults (Mainly men) over 60, but its becoming more prevalent in the AYA community. The More I read about it, the more talk to other RCC survivors online, I keep hearing about how sneaky it can be. How people have been deemed "cancer free" only to have it show up in their lungs or bones. I am still just as terrified of it as I was the day they found it, and I don't even have it anymore. I have to say the scariest thing about this entire experience was having to trust another human being with my life, and that's exactly what I have to do, whenever My doctor tells me I'm OK, that the cancer is gone, I have to trust that he's not missing something. Which is difficult when you have been under doctor's care since childhood, had yearly check ups, blood-tests, surgeries, and even chest x rays, And they never found a thing, but the only way to really see Kidney cancer early is to look at the kidneys, which unless you have kidney stones, they usually don't. So in closing, Friends, if you have your health, Keep it. Don't Smoke, and enjoy the little things you take for granted..... your energy, your peace of mind, that little extra cash you get to spend on yourself at the end of each month, the way you feel like you look great right before a night out with the girls, and NOT having 2 panic attacks over a doctor's appointment. :) If your are in the same boat as me however, don't despair. We have an appreciation of life's moments that others can't understand, because we know how precious and fleeting they can be. We know what we have and measure our riches in moments, not dollars. We have Family, Friends, Fellow Survivors, and the knowledge that WE KICKED CANCER'S ASS, is there anything we can't do?

7 comments:

  1. I am a 41 year old woman. I just had a partial nephrectomy on my left kidney a week ago. Tumour was only 2.8 cm . And caught early. I too completely understand and feel exactly the same. Thankfully I have medical insurance so there was no cost to me but the healing time away from work is putting a strain on us financially. Thank you so much for sharing.

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  2. I was diagnosed with lymphoma at age 25. Now, 5 years down the line at the age of (almost) 30 and considered "disease free", I can testify to the fact that The Feeling (you called it "being lost at sea") never goes away entirely (especially when a follow up at the doctor is looming!), but it DOES get less and less over time. One random morning a few months or a year from now you will wake up and feel close to "normal" again. There will even be days here and there that the thought "I have/had cancer" won't cross your mind. I didn't believe this to be possible, but it is. There is nothing one can do to speed this process up. It just happens. And it is WONDERFUL when it does. I hope this brings you some comfort...

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  3. First of all, CONGRATS TO KICKING CANCER'S ASS! Second, if you happen to find an answer as to why it is nearly impossible to simply "move on" from cancer, please let me know. I am 7 years into remission from Stage 2B Ovarian Cancer. I was diagnosed when I was 18(and thankfully will turn 27 next week) and still have yet to be able to "move on". I kind of feel like it's a little bit harder BECAUSE we were diagnosed so young. I now have so many more years to be worried & scared the damn thing will come back. Don't get me wrong, having the chance to even say "many more years" is a huge blessing, but these past 7 years haven't exactly been walks in the freaking park lol. I am constantly undergoing different scans & tests just to make sure I am not imagining the pain or little lumps I feel. My husband and I have been TTC for 3 years now with no luck, we will be seeking fertility treatments soon. That being said, i do appreciate so many things, so much more. I live for the little moments & celebrate the big. I never thought I'd live to be married or get to experience my niece & nephews being born & growing into amazing little people, but I am still here & I am enjoying every minute-good or bad. I do also understand the stress and strain you are going through & I feel for you. Thank you so much for sharing, I hope your future is brighter and, of course, without that damn cancer monster ;)

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  4. I was diagnosed with non Hodgkins lymphoma at 21. Was in remission at 23, now diagnosed with liposuction at 38. I declared medical bankruptcy in 1999. I had no health insurance the first time around, $300,000.00 in medical debt. It was easier to get treatment back then with no insurance then now with state medicaid. Seven months since diagnosis and I have had to fight tooth and nail to go to a sarcoma center since it 8 a rare disease. Unfortunately you have to make cancer a part if you reality. You are not cancer but it is in your life always in some form....

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  5. If "The Cancer" is only on your mind, consider yourself lucky. 7 years out from Hodgkins Lymphoma, and I now deal with fibromyalgia which is every bit as bad as chemo days, except I don't have a reliable 4 days of "suck" and then 10 days of feeling good before more "suck". I am cancer free, waahoo to that! But the entire ordeal has left me feeling like half a person, about to turn 41, and I feel more like an 80 year old (I imagine) feels. My career took a nose dive and I haven't been able to recover from that either. My cancer was poorly timed, so I was unemployed already when the recession hit, then once I had a job, was the low man on the totem pole, so I was the first to get laid off again. 2 years of school later, economy was STILL bad, and now I've had two major breaks in my employment history in the past ten years. Sure it can be explained, but then you're viewed as a liability too. My credit rating also took a nose dive into the "never going to get a loan again" status. At 32 when I was diagnosed, I was a little too old to be young, and a little to young to be established. Since I wasn't married I was much more like the younger people, but unable to get any real aid in righting the ship once I came through the storm.

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  6. "The Cancer" is always on my mind also. Diagnosed 1C Ovarian Cancer last year at the age of 27. Didn't have chemo and had fertility sparing surgery. I am always afraid of the pains that I feel. Also some doctor recommended chemo and more surgery but we (my onc and I) decided against it because treatment for my stage was an either or situation. Now I am always questioning myself about it. I have been to see my doc a few times convinced IT is back, but I am "fine".

    I'm from Ireland and our health system is a lot different. I had health insurance already and haven't had to pay for any treatment so I am completely blessed in that sense. I don't get the American system at all.

    So now I am on strict orders from my Oncologist to have a baby asap because they don't want to leave me with my other ovary for long. I have to have it out when I have finished having kids. The pressure of that is making it all so much harder.

    I go from "is that feeling I am getting a bad cancer pain" to a "is it a good I might be pregnant pain". And then every month when I get my period I get sad because I have failed again and scared because the pain might be something sinister.

    So yeah. Moving on is just not happening any time soon for me. My family seem to have bounced back fast. They don't like it when I bring it up in conversation. Awkward! I know I am really lucky to have caught this early and I do feel really lucky every day. But it also kinda sucks.

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